The NHS needs data about the patients it treats in order to plan and deliver its services and to ensure that care and treatment provided is safe and effective. The General Practice Data for Planning and Research data collection will help the NHS to improve health and care services for everyone by collecting patient data that can be used to do this. For example patient data can help the NHS to:
- monitor the long-term safety and effectiveness of care
- plan how to deliver better health and care services
- prevent the spread of infectious diseases
- identify new treatments and medicines through health research
GP practices already share patient data for these purposes, but this new data collection will be more efficient and effective.
This means that GPs can get on with looking after their patients, and NHS Digital can provide controlled access to patient data to the NHS and other organisations who need to use it, to improve health and care for everyone.
Contributing to research projects will benefit us all as better and safer treatments are introduced more quickly and effectively without compromising your privacy and confidentiality.
All practices are legally required to share data with NHS Digital. The data is used to help.
The start date for data sharing with NHS Digital has been delayed to 1 September 2021.
Please visit the link below for more information, including what data is shared and why, the legal basis and registering opt outs. This link regularly updated by NHS Digital.
General Practice Data for Planning and Research: NHS Digital Transparency Notice – NHS Digital
Opting out of General Practice Data for Planning and Research (GPDPR)
If you do not wish to share your identifiable patient data outside of your GP Practice please complete the Type 1 Opt-out form on this link and send the completed form to your GP Surgery. If you have opted out previously you can also use the same form to withdraw from opting out, this should also be returned to your GP surgery.
If you do not want your confidential patient information to be shared by NHS Digital for purposes except your own care – either GP data, or other data we hold, such as hospital data – you can register a a National Opt out by visiting https://www.nhs.uk/your-nhs-data-matters/manage-your-choice/
You can find out more about and register a National Data Opt-out or change your choice on nhs.uk/your-nhs-data-matters or by calling 0300 3035678 – please DO NOT call your GP surgery for further information, the above links are updated on a regular basis so all their information is correct.